Acrodysostosis doesn't stop me.

Pedro is our light and inspiration

Aurora's strength and a joy of life is infinite

Georgie is determined to give back to the GOSH by studying medicine

Before our lives changed.

"Finding our group was a real blessing"

"We wouldn’t trade these last 21 years for anything!"

"Acrodysostosis doesn't stop me dancing"

The resilience of a survivor

Musical Maddie!

The boy with the best laugh in the world

Overcoming stigma to find my happiness

Jordan's Journey

Meet the family behind the Facebook group

Anna's Story

Lily - her brother's super hero

"She doesn't let anything stop her!"